CLICK HERE FOR FREE BLOGGER TEMPLATES, LINK BUTTONS AND MORE! »

Wednesday, December 29, 2010

Prayers for Mitchell

This all started when he decided that he was done nursing, so about 3 weeks ago. Mitchell began to have constant diarrhea but I chalked it up to teething. A couple of days ago he started running a low grade fever and yesterday I found him pulling on his ear so I decided it was time to take him to the Pediatrician to see if something was going on. When we were called back the nurse had me weigh him and he weighed 14lbs 12 oz, when we were there for his one year check up in Oct. he weighed 16lbs 9 oz. He had lost almost 2 lbs in 3 months! I started crying because I felt horrible and I couldn't believe that I hadn't noticed he was loosing weight. He has been eating like a horse and should have been gaining, not loosing!! When our Pediatrician came she asked about his fever and how long he'd had it for, then we moved on to the diarrhea and I told her that it had gone on for 3 weeks. (When I say that now it sounds like so long and I can't believe that I didn't take him sooner but he didn't seem unhappy and there wasn't anything else that went with it so I chalked it up to teething.) We discussed possible diagnosis and she thinks at this point it is one of three, Celiac's, a hyper-thyroid or an intolerance to lactose. I am alright with any of those three, I don't know what I am going to do if it isn't one of those. That is what scares me the most, the idea that it may not be one of those, that it is something big and bad and ugly. I keep doing the woulda, shoulda, coulda thing over in my mind, beating myself up!! We have cut out Gluten and lactose as of today and hopefully we will see results and he will begin to gain weight. I am just asking for your positive thoughts and prayers for our little Mitchie Guy as we try to figure out his weightloss and what to do about it. On the upside, his fever was due to an earinfection and he is on antibiotics and they are already helping him to feel better.
Katie

Sunday, December 26, 2010

Normal

I found this on another blog I frequent.

Warning: this article is intended to make a serious point in an interesting way. It is not meant to offend anyone, except possibly doctors.

--------------------------------------------------

I'm very sorry, I have the results of the genetic tests and they have confirmed our suspicions that your fetus is what we call... Normal. Some people prefer the terms "Ordinarily Challenged" or "Normal Syndrome". The syndrome can be easily identified by a complete lack of any interesting genetic characteristics. I know this will come as a shock to you, but you should be aware of what this is likely to mean.

If your fetus manages to survive the rest of the pregnancy and the birth, which is becoming more common these days, he or she will face some daunting challenges. Children who suffer from normalcy are prone to health and psychological problems. It is almost certain that the growing child will suffer a seemingly endless stream of viruses. They will frequently damage themselves, and sometimes others, from their excessive energy.

Their relentless demands will put a strain on your existing family and, of course, your relationship with your partner will suffer, and possibly end in a painful and acrimonious separation. Any children you already have, even if they also suffer from normalcy, will be jealous of the newcomer and all their extra attention. Many siblings are liable to be psychologically scarred by the new arrival.

I need hardly mention the financial consequences, although disastrous, they will be nothing compared to the emotional turmoil your life will suffer.

After a while, you may be lucky and find they can be kind and loving young children. They may find some temporary happiness in things such as music, dancing, food or playing with toys.

But if they survive early childhood, a Normal child is almost certain to grow into a Normal adolescent. Your years of sacrifice will be thrown back in your face as they become disobedient, wild and reckless. Unable to find happiness and contentment, they will treat you with contempt until they manage to leave home. Even then the suffering will continue as they will often return to try and extract money. They will blame you for their own faults and leave you bitter and twisted.

They may well become criminals, over a quarter of Normals will have trouble with the law, many will spend time in jail. Many will have problems with alcohol or drug abuse. Normal marriages are often unhappy and short and over half end in divorce.

Even if they become successful this is likely to be because of the often observed tendency of Normals towards excessive greed. The chances of them sharing their success with you are remote and they will tend to see you as an embarrasment.

Finally, Normal people are likely to die before their time. 23% will die of cancer, 33% of heart disease. Hundreds every year in this country alone are so distressed by their condition that they take their own life. I'm sorry to say that many will have had a lonely, painful and pointless existence.

I am afraid that Normal Syndrome is a genetic condition that affects every cell of the body, and so is impossible to cure.

Termination is an option.

Shall I book an appointment?


...from a parent who received a diagnosis rather like this.

Tuesday, December 21, 2010

Merry Christmas!!

I can't believe that Mitchell will be celebrating his second Christmas this year! It doesn't seem possible that he is almost 15 months old, the time sure does fly! Mitchell is doing so many things this Christmas that I didn't think he would be doing for a while. He is crawling and pulling himself up to stand, he is playing with his toys, he is tormenting the dog and his brother and sister. I love watching him get into trouble because one year ago I didn't think he would be getting in trouble, I didn't know what he'd be doing but I never thought he would be crawling and I certainly didn't think he'd be mischievous!! That's the thing about DS, they prepare you for the worst when you leave the hospital but they certainly don't prepare you for what's coming! If I would've been told how much joy he'd bring our family maybe some of my heartache wouldn't have come. I still have my bad days but they are few and far between. I think I will always worry more about Mitchell but I'm alright with that.
A couple of weekends ago, we were able to meet up with another DS family. Cylus is 14 and he was a lot of fun. His parents were wonderful to visit with and they answered a lot of questions and told us a lot about Cylus and his development. At one point in our conversation, Cylus's dad, Dave, said that Cylus is more like their other children than unlike them. While we were with him he played video games with the other kids, ate pizza, told stories about the dance he had just attended and got mad at his parents! We really enjoyed our visit with the Medina family and I look forward to future visits.
I haven't posted pics of Mitchell for a really long time so here they are!!

Thursday, December 9, 2010

We are going to the National Downs Syndrome Conference!!

Mike and I have been discussing whether or not we should go to the conference this coming year. We had decided that it might not be practicle though as we have a quite a few things planned. I went ahead and asked Maryanne, who is from our Regional center while she was at the house today if there was funding for families who want to go to different trainings/conferences and told her about the DS conference in San Antonio this coming summer. She told me that she would see what she could find out about state funding through various programs and when she called me back she informed me that she found enough money to cover travel expenses!! I am so excited I want to scream WOOHOO!!!

Wednesday, December 8, 2010

One day at a time

In the past few days I have spent alot of time being scared for Mitchell, or so I thought. Really, I am scared for myself. It's not Mitchell at all. He is doing wonderfully, he's pulling himself up to standing, crawling like crazy and getting into so much trouble. I am scared for me, what my life is going to be like, I know that sounds so selfish but just hear me out.... I want to know what I can expect of him, I don't want to expect to much of Mitchell and be disappointed but I don't want to expect him to do nothing because that is what I would get. Right now I feel like I can expect "Normal" things out of him, he is a normal kid but as he grows up I don't know what I can expect. I want to keep expecting normal things but I don't know if I dare. I want to know if my life is going to be about taking care of Mitchell or if someday he'll take care of me. I know that Mitchell is always going to need me more than my other kids but how much more? I know that he'll bless our lives and everyday I am thankful that I was chosen to be his mother. I guess I just need to learn to take it one day at a time because when I look to far ahead I make myself crazy!

Tuesday, December 7, 2010

In a funk!!

I have had such a heavy heart lately. I don't know if it's just that time of the year when life is so chaotic or if it is because I have been really reflecting on the past year. I have really been struggling with Mitchell and everything that goes along with Down's Syndrome. I just wish I could wake up and he would somehow just be free of Down's Syndrome but if that happened he wouldn't be Mitchell. I just want to have peace in my heart about everything. I want everything to be better and not so scary. I tell people all the time that I wish I had a magic orb to look into, to see what Mitchell's future holds. Will he have a job? Will he live on his own? Will he marry? I just want to know so that I can prepare myself, good or bad. I love him as I do all of my children but I don't worry about my other children like I worry about Mitchell. I want to know that I am doing right by him, I want proof that I am doing the right things... Is that too much to ask? Everytime I reach this point I turn to all of my blogger friends for help, prayers and inspiration. You all are amazing and really do help me to find strength just when I need it most.
Thank you,
Katie

Wednesday, October 6, 2010

He's one!

Today is Mitchell's birthday. I think this birthday Mike and I will be celebrating us. We made it. Through thick and thin, lots of tears, heartache and hurt, we made it. A year ago I felt as though there was nothing to celebrate but a year later I know there is so much to celebrate! We have made it through many scares, many unknowns, we made it and our marriage is stronger because of Mitchell! While it wasn't an easy year, we have both grown so much stronger, we have learned to love each other through thick and thin, we have learned to rely on one another more than we did before, we have found peace within one another. I love my family, I love Mitchie Guy and I love my husband. The last year has shown me that with my family and God nothing is impossible!
Happy Birthday Mitchie Guy, I love you more than you'll ever know!

Tuesday, October 5, 2010

21 reasons why I love my T21 guy!!

1. His smile lights up the room!
2. He is so happy.
3. He is so determined.
4. He loves me so much!
5. When I pick him up out of the crib, he is so excited to see me!
6. He blows great raspberries.
7. He gives sweet kisses.
8. He's got red hair!
9. He's just precious!
10. He's got beautiful blue eyes.
11. He has taught me a lot about myself.
12. He makes me laugh.
13. He reminds me to take one day at a time!
14. He reminds me not to sweat the small stuff.
15. He has shown me what unconditional love is all about.
16. He has reminded me that each and every child develops at their own pace.
17. He has helped my faith in God.
18. I now see beauty in all people.
19. He has helped me gain patience.
20. Did I tell you that he has the greatest smile?
21. I love him because he is my one of a kind Mitchie Guy!

Monday, October 4, 2010

What a year!!

This is such a big week at our house! One year ago tomorrow I started having labor symptoms and I couldn't wait to meet the little guy (or gal) that had occupied my ever-growing belly for the last 9+ months. Mitchell was born on Oct. 6th weighing in at 6lbs 10oz and he was perfect. I loved him the moment I layed eyes on him, he was such a precious little dude. I layed awake the entire first night and just held him and snuggled him, never imagining the news that was coming my way. I shouldn't say I couldn't have imagined getting his diagnosis because I remember thinking his eyes were a little different, he wasn't passing his hearing screen and he was having trouble nursing but like I said, he was perfect. It will be a year ago Friday that the Pediatrician came in and gave me the news that rocked our world. "I think that your son has something wrong with him, I think he has Down's Syndrome." That was the most devistating day of my life thus far.
Fast Forward to today. What a joy Mitchell is. He is funny, determined, loud, smart and incredibly handsome. When I found out that my son had Down's Syndrome I immediately feared the worst, he's never going to go to school, he's not going to have friends, he just isn't going to be NORMAL!! Boy, did I have some learning to do!! He has done everything before his "Normal" brother did. He smiled at 8 weeks, his brother didn't smile until 9 weeks, he crawled at 11 months, his brother didn't until after a year. He's attempting to stand up and he jabbers up a storm, both things his brother didn't do until much later. I now am hesitant to label a child as "Normal" because there is no normal as Mitchell has shown me. Mitchell has taught me lessons in many subjects, including lessons in determination, happiness and love. We have been blessed by this little boy who came into our lives one year ago. I have grown so much since that day when I got his diagnosis, he has changed my life forever and I wouldn't have it any other way!

Thursday, July 15, 2010

A few pics of Mitchell


Mitchell is getting so big! He is now able to sit for long periods of time and play! Go Mitchell!

Mitchell and Merrick making scary faces for the camera.

Mitchell's aunt decided he needed his hair done and this was the end result.

Wednesday, July 7, 2010

We are going on VACATION!!

We are getting ready to head up to Washington in a few days and the kids are getting super excited! We are going to be in Seattle on Sunday where we will watch the Mariners take on the Yankees, I am so excited to see Derek Jeter!(HEHE) ;) We are going from Washington over to Idaho where we will spend time with my MIL, I know we will have a blast there as well. There is so much to do on this trip, when I start to think about it all my mind starts to spin... What happened to relaxing while on vacation? I guess that once children are in the picture a relaxing vacation goes by the wayside!! I think what I am worried about the most is all of the driving time and how trying to figure out how to occupy my 3 angels (though in the car they may be devils!) If any of you have any fun traveling ideas, let me know!

Monday, July 5, 2010

I need to vent!!

This has nothing to do with my children but rather a friend of my husband... My hubby has this friend that recently moved back into town and he calls our home constantly!! Not once or twice a day but on the hour for hours at a time! I am to the point where I see his number and I hit the silence button and once he hangs up I turn off the phone's ringer! I am going insane!!! He begins calling at percisely 2 in the afternoon when he knows hubby is on his way home (this happens to be NAPTIME!!) and continues to call, while leaving stupid messages, until hubby calls him back. We happened to be away from our home tonight and he proceeded to call three different times in three hours! His message sounded something like this "I thought answering machines were for people that aren't home.. I know your home but you're just not answering.. Answering machines were a stupid invention.." My hubby doesn't know how to proceed without offending him because he is easily offended but we have both HAD IT!!

On a bright note, Mitchell is doing well! He is rolling all over, sitting up on his own and he's begining to do the army crawl thing, and he talks! Jabbers, talks, it's all the same... point is that he is a noise maker. He is alot of fun. His brother and sister have started to really enjoy him because he interacts with them now and he thinks they are hilarious! He still doesn't have any teeth but I am assuming they are on there way because he chews while nursing... Can you say OUCH!! I have a feeling that once his first tooth comes in our nursing relationship will be over because he bites too hard! I am just thrilled that he has nursed for this long.

I have seen many posts recently about blood work testing the Thyroid and blood cell counts and I was wondering if these are tests that I should have done regularly or only if there is reason to be concerned? I know that the tests were done when he was born but they haven't been since, do they need to be done yearly?

Thanks for reading while I ramble on...
Katie

Wednesday, May 19, 2010

perfect

My oldest is really growing up, maybe a little too fast. She has recently discovered that not everyone has the things that she has, she has found out that some moms don't love their children unconditionally and that many children live with grandparents or other relatives instead of with a mom and/or a dad. She has started to ask if I'm going to leave her, it breaks my heart that she thinks that I could. I really liked it when she thought that the world was so perfect, I hope that she knows that I try to make her world perfect.

Monday, May 17, 2010

My little blossom

It is Spring time here in N. California and lots of things are growing including one awesome little man, Mitchell! He is growing like a weed, not only is his weight increasing but also his abilities. He is sitting up with minimal help, starting to self feed, learning how to get into a crawling position and he is rolling all over the place. He is really funny and he knows he is, he cracks himself up and it is really funny. I have his giggle recorded on my phone and when he hears that he laughs even harder, he loves to blow raspberries and thinks it is hilarious when you blow them back at him. He is a funny little guy and definately the happiest baby of my bunch!

Tuesday, April 27, 2010

A long time

It has been a long time since I have "Blogged" but we have had a crazy winter(which apparently isn't over because it is snowing outside!) Mitchell has had chronic breathing problems this winter and we were finally given our own nebulizer so that we can give him breathing treatments when he starts to cough and wheeze. Other than breathing problems Mitchell is doing wonderfully! He is really starting to move, he rolls well and is starting to roll to get to where he wants to go. He is also trying to sit up, sitting up is his favorite postion because he can observe his sibblings doing silly things. Mitchell has been surprising me continuously since his birth, maybe because I expected something so different from what he is doing. To my surprise he is developing at a fairly normal rate, he's not to far off on hitting his milestones on time and he is, well, amazing. His smile lights up his whole face and his laugh is contagous! It was really hard on me when he was sick because his smile faded and he forgot how to laugh, he looked pitiful. His eyes lost their sparkle and they drained down the sides of his face, he had constant tears on his cheeks and so did I. I cried with him and for him, it was a really rough time for both him and I.

Monday, February 8, 2010

It's been a while

Everyday I have great intentions of updating my blog but life gets in the way! We have had so many things going on at our house this past month, power outages, strep throat and numerous doctors visits to name a few. After the cold Winter we have had I am looking forward to warm tempatures and flowers again, I can't wait for Winter to leave and Spring to rush in!
Today Mitchell had his 4 month checkup and is doing wonderfully! He is steadily gaining weight and he continues to meet many of his milestones. He is still having some difficultly with head control and he is not rolling over but he'll get there. He is smiling and jabbering up a storm, he responds to voices and loves looking at his surroundings.
Mitchell has become such a bright spot in our lives, it is hard to imagine life without him. I still have days when I feel sorry for myself but then he grins at me and reminds me that it's going to be alright. He has not only perfected his grin but now he GIGGLES!! I love his hearty little giggle, when he giggles so do I!
Lately I have become irratated with so many of our healthcare providers, I don't need to be told at every visit that we can expect our son to be delayed. I get it, there may be delays!! I don't need to be told repeatedly that my son is going to be delayed. I know that he will be able to everything, he's just going to do it all on "Mitchell time" which is fine with us. He is teaching us to slow down and take it all one day at a time.